MS Diagnosis What to Expect



My MS diagnosis - the conclusion

Sign Up for Our Living with Multiple Sclerosis Newsletter

Thanks for signing up!

For the past couple of posts I’ve been recounting the week of my diagnosis of multiple sclerosis back in 2001. I appreciate your kind comments, and I hope that even those of you that were diagnosed a long time ago still find this recollection at very least entertaining, if not helpful.

When I stopped on Wednesday, I was making my way out of my first MRI…

At that time, I didn’t know a whole lot about the protocol of the medical world (that’s an education I would have gladly gone without). I peeked into the NASA-like control room of the MRI and saw what I assumed were green/white images of my head and neck on a large, flat computer screen. I know I searched to the fullness of my capacity in the mere glance or two I could steal while flirting with the MRI tech (yes, I was still Trevis…). I saw nothing.

I was told that the radiologist was still on duty that evening and would be reading them directly. However, I would have to wait until the next day’s follow-up with my primary care physician (PCP) for any information. This just wasn’t going to sit with me for the night.

I was a busy man. I had appointments to keep. I was “the Chef!” When I placed an order to my line, I expected an answer back and a dish when I said so! I was resolved not to leave without an answer. I now feel a little bit sorry for the young radiology resident who had duty that night.

I dressed slowly. It was by design that I did so, but I’ll also admit that a left side being less cooperative than a camel on a tightrope assuredly elongated the process. The dressing/waiting areas of this particular facility were close enough to the open office door of the doc-on-duty that I could hear him say my doctor’s name and my name on the phone. My eyes met my wife’s and I think I actually stretched my head, neck and ear out the door toward the office.

You must know that with a large ego and persona comes large responsibility. I know I have the ability to physically and intellectually bully a (deserving) opponent. I don’t use this ability often. However, that night, this man was backed into his office and “forced” to say the words he wanted my doctor to relay.

“Might be,” “could be,” “appears to be,” “more tests,” “Blah, blah, blah… Non-Hodgkin’s lymphoma or multiple sclerosis.” Note to self: Be careful, Chef Trevis, what you ask people to reveal. It may not be what you want to hear.

The following hours were like none I had ever experienced (but have since). I spent hours scouring the Internet for information about MS. The only thing I found that was consistent in my search was that MS was not fatal. Everything else about MS seemed to be possible. I could end up in a wheel chair, a hospital bed, blind, effectively mute, a financial burden. It wasn’t looking good.

The next morning had us back at the doctor’s office for the “official” findings from the radiologist. From there I was sent (the next day) to a neurologist about 30 minutes from my home for confirmation and a spinal tap (that’s a story for another blog) and my first infusion of steroids.

The rest of this story seems less poignant as I look back, save this. By the end of the week, I was spent. I was sleeping 14 plus hours a day and could still only muster enough energy to pee before needing a nap. My assistant was covering for me at work, but I knew that wouldn’t last long. I needed to get all of this off my mind, but how?

The answer came in a call from a friend, Dianne. We met for coffee in a little shop in the ground floor of my building. She was undergoing chemo for a virulent stomach cancer (one that would kill her within the year) and I was in the midst of my course of solumedrol. Sitting, heplocks in our hands and chatting over coffee, I realized that my life, our lives, were forever changed.

I have acquired much knowledge since that week seven years ago. I have relapsed and recovered; I have slipped, slid and “progressed” with this disease. I have learned much in my search for answers; mostly I’ve learned what we don’t know. But nothing I’ve learned has been more true than the observation with Dianne at Tony’s Coffee...my life has forever changed.

Wishing you and your family the best of health.

Cheers,
Trevis

Last Updated:5/2/2008
Important:The views and opinions expressed in this article are those of the author and not Everyday Health.
Any opinions, advice, statements, services, advertisements, offers or other information or content expressed or made available through the Sites by third parties, including information providers, are those of the respective authors or distributors and not Everyday Health. Neither Everyday Health, its Licensors nor any third-party content providers guarantee the accuracy, completeness or usefulness of any content. Furthermore, neither Everyday Health nor its Licensors endorse or are responsible for the accuracy and reliability of any opinion, advice or statement made on any of the Sites or Services by anyone other than an authorized Everyday Health or Licensor representative while acting in his/her official capacity. You may be exposed through the Sites or Services to content that violates our policies, is sexually explicit or is otherwise offensive. You access the Sites and Services at your own risk. We take no responsibility for your exposure to third party content on the Sites or the Services. Everyday Health and its Licensors do not assume, and expressly disclaim, any obligation to obtain and include any information other than that provided to it by its third party sources. It should be understood that we do not advocate the use of any product or procedure described in the Sites or through the Services, nor are we responsible for misuse of a product or procedure due to typographical error.





Video: MS and Antibiotics (Diary - Parte 4 | 18 month trial conclusion)

My MS diagnosis - the conclusion
My MS diagnosis - the conclusion images

2019 year
2019 year - My MS diagnosis - the conclusion pictures

My MS diagnosis - the conclusion forecasting
My MS diagnosis - the conclusion forecast photo

My MS diagnosis - the conclusion picture
My MS diagnosis - the conclusion pics

My MS diagnosis - the conclusion My MS diagnosis - the conclusion new pics
My MS diagnosis - the conclusion new picture

foto My MS diagnosis - the conclusion
pics My MS diagnosis - the conclusion

Watch My MS diagnosis - the conclusion video
Watch My MS diagnosis - the conclusion video

Communication on this topic: My MS diagnosis - the conclusion, my-ms-diagnosis-the-conclusion/
Communication on this topic: My MS diagnosis - the conclusion, my-ms-diagnosis-the-conclusion/ , my-ms-diagnosis-the-conclusion/

Related News


70 Flattering Balayage Hair Color Ideas for 2019
Caroline Wozniacki Shares Her Diet During the U.S
Whitney Port Oozes Natural Beauty in Ash
The truth behind victim shaming and why we need to break free from it
Kids Two Homes: Tips for Post-Divorce Parenting
How to Access iCloud
How to Cook Lamb Shanks
How to Gear Up for a Motorcycle Ride
Sonia Rykiel FallWinter 2014-2015 Collection – Paris Fashion Week
The swine flu and your children
Brendan Cole reveals brand new project after Strictly axe – and you’ll recognise his famous co-host



Date: 06.12.2018, 14:38 / Views: 94585